Annual Conference 2019 - Digital health in MS Management

This year was a special EMSP’s Annual Conference, since the organisation also celebrated its 30th Anniversary. Throughout the years, this event has become a ‘to-go-to’ meeting for patients, healthcare professionals, industry, patients’ organisations, policy and decision-makers and key opinion leaders in the field of MS. In 2019, the EMSP Annual Conference brought together 172 delegates from 32 European countries between 9-11th May, in Vilnius, Lithuania. It provided a platform to engage in a dialogue on the needs of the people with MS, and how the issue should be addressed politically both at European and national level.

This year’s Conference theme was Digital Health in MS Management, raising the following topics:
What would digital innovation bring for people with MS?
  • Developments on electronic recording and better evaluation of the symptoms;
  • Progress on supporting care management by the patients within a multi-disciplinary approach framework;
  • Developments on data collection systems.
  • Currently, the means used to follow and treat MS are not optimized. The patient assessment relies on a score coming from medical standards tests (MSFC, EDSS, etc.), which are hard and lengthy to conduct and present several limitations. We strongly believe that connecting health data across Europe to support evidence-based care will bring a difference in the quality of care received by MS patients.

    Furthermore, digital applications and health records empower individuals to better understand and manage their health and well-being. Technologies and digital tools are allowing healthcare professionals to deliver services remotely, thus improving access and facilitating communication between patients and healthcare professional.

    Highlights:

  • Sabina Brennan. Psychologist & Neuroscientist Trinity College Dublin, Ireland : How digital health can improve patients’ involvement in MS research
  • Daphne Kos, Vice President of Rehabilitation in Multiple Sclerosis: A multi-disciplinary approach in rehabilitation and benefits of digital health
  • Nicola Bedlington, European Patients Forum (EPF) : The latest priorities on digital health policies at European level
  • Susanna Van Tonder, MS Society of Luxembourg : A young person’s perspective on digital health in MS management
  • Marcello Moccia, University College London & Federico II University of Naples : The latest key developments in research and innovation