For the last decade, the MS Barometer served to track MS management in our health and social systems:. collecting data on how health and social systems are performing, indicating areas for improvement - just like an exercise performance tracking tool that tells you what to improve. EMSP, together with its Member Organisations, collected the data and used this tool for European and national advocacy efforts to strengthen health and social systems that should serve by improving the quality of life of people affected by MS.
In preparation for the new edition in 2019, EMSP reviewed the MS Barometer concept and questionnaire in order to update the tool for the evolving health and social systems, and the better measurement of MS management outcomes that impact the quality of life of people affected by MS.
The new MS Barometer is inspired by the overarching health vision of the World Health Organisation (WHO) in which “all people have equal access to quality health services that are co-produced in a way that meets their life course needs, are coordinated across the continuum of care, and are comprehensive, safe, effective, timely, efficient and acceptable; and all carers are motivated, skilled and operate in a supportive environment”.