Multiple Sclerosis is the most common disabling neurologic disease amongst young people. Therefore, EMSP has been actively supporting the youth from the very beginning to ensure that they have a strong voice in determining their own objectives and priorities. In the past nine years, the Young People’s Network (YPN) of EMSP has grown in numbers and strength, and today we are proud to have over 100 members from across Europe on board.
Last year we continued building on the current YPN to develop a stronger European network of young people living with Multiple Sclerosis and to increase the number of patient advocates on the continent. We have activated the YPN 2.0 with a renewed strategy. This upgraded version of the YPN aims to bring change both on regional and European level; the quality of life of people with MS will improve through the inclusion of the young people in the governance bodies of the national MS associations by participating in the decision-making processes, which impact their lives.In order to make sure that young people are empowered and prepared to participate in determining their treatment choices, EMSP have organised several webinars, as well as a training workshop aiming at helping young MSers to effectively raise awareness and run advocacy campaigns. EMSP supported throughout the years the representation of the MS voice by young people from the network through different activities.
Representing the YPN in the European patients’ movement, three members attended the 1st European patients congress held by the European Patients Forum (EPF) in November 2019. EMSP also continued its special article series launched in 2018, based on testimonies from members of our Young People’s Network with 3 new entries: